EEPDwiki:Perinatal Datasets

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LINKS TO OTHER PERINATAL DATASETS

Contents


This section contains useful online resources to inform the debate on the wording of questions and answers - please help us build up and maintain this list of links. See also Hand Held Records and Perinatal Paperwork. For general datasets not specifically applicable in perinatal care, see our related WISDAM website.


Rupert Fawdry's detailed work on datasets



UK Datasets

For links to hand-held records (e.g. Perinatal Notes, Scottish & Welsh records) go to Hand Held Records

NHS National Maternity & Children's Dataset

The Health & Social Care Information Centre (HSCIC) came into being on 1st April 2013. It has responsibility for the Maternity & Children's Datasets. We have already noticed (4th April 2013) that several of the relevant links on the new HSCIC website are broken.

According to the Maternity Dataset homepage (4 April 2013):

The maternity data set provides national standards for data from Maternity healthcare providers in England. It reflects key information captured from any patient using a maternity service. This data set standard will be used both locally and nationally to generate 'secondary uses' information - that is, a purpose other than direct clinical care - to nationally defined standards.


To make it easier to trace the version history of the Maternity Services Secondary Uses Dataset (MSDS) and related documents, we're listing them here.



The MSDS focuses on output. The old NHS Information Centre 2012 implementation guidance page stated that

"The Maternity Services Secondary Uses Data Set defines an output standard, which is to be compiled from existing clinical records to enable monthly submissions to a central data warehouse. It does not represent a definitive list of data items and values which may need to be captured for care delivery, merely a subset to which local data should be mapped for national submission and analysis purposes. NHS Services will have the flexibility to adopt any local data collection process and employ whichever IT system that is capable of extracting data in accordance with the output specification."


The MSDS draft submission was approved by the Information Standards Board for Health and Social Care in March 2010, despite several reservations[1]. It was noted that "There is a lack of evidence of consultation with commissioners. This may mean a lack of acceptance of the need to implement the standard."[2]

The MSDS obtained approval from the Information Standards Board in January 2011, conditional on obtaining a confirmation of commitment to funding[3]. The Review of Central Returns (ROCR) burden of the MSDS was reported as 2.86 person years and £382,445.[4] The Information Standards Notice (ISN) to mandate local implementation of the standard was published in May 2012.

see also
Rupert Fawdry's 2011 comparison of the MSDS (January 2011 version) and Logical Priority datasets
Rupert Fawdry's 2007 comparison of the MSDS (2006 version) and Logical Priority datasets

West Midlands Maternity Core Dataset

MANNERS

see also Rupert Fawdry's 2005 comparison between the MANNERS and Logical Priority datasets as they then existed


NOAD

The Obstetric Anaesthetists' Association National Obstetric Anaesthetic Database (NOAD)

HES

Hospital Episode Statistics (HES) Maternity data


NHS Data Model & Dictionary Service

Neonatal Critical Care Minimum Data Set

CHIMAT

Child & Adolescent Mental Health National CAMHS Dataset: Data Dictionary - Version 1.1 (2005)


Scotland

ISD Scotland

SMR02 Maternity Inpatient and Day Case
Summary of Codes - SMR02 (March 2012)
Data Quality Assurance of Maternity Data SMR02

Other UK

  • NN4B NHS Numbers for Babies
Maternity System Specification Version 5.1 (undated). Data quality control point: although the title page and footer of this document say 5.1, the header still says 5.0

International Datasets

International

"The indicator descriptions presented herein are designed to promote standardization of definitions and concepts among the international RH community. Whereas standardization is useful, organizations should adapt indicators to their specific circumstances. This approach not only ensures that the indicators are relevant to the organization in question, but promotes ownership of the monitoring and evaluation process. However, organizations that choose to adapt (modify) indicators should clearly state the new definitions and methods of measurement."

Alphabetical by Country/Region

AFRICA - GENERAL
AUSTRALIA
CANADA
  • British Columbia Perinatal Data Set
  • Newfoundland & Labrador Provincial Perinatal Surveillance Program
[http://www.nlppp.ca/NL_PPSP_variablelistingApril2012.pdf Variable listing (April 2012)
Variable listing (Jan 2010)
Provincial Perinatal Program Perinatal Database: Data Elements Workbook (2004)
EUROPE - GENERAL
Euro-Peristat
FRANCE
Cahier des charges des logiciels en périnatalogie (2007)
Perinatal files (downloadable paper forms)
Evolution of the AUDIPOG files (in English)


GERMANY


IRELAND
LATIN AMERICA - GENERAL
Latin American Center for Perinatology Perinatal Clinical Record
Filling instructions & definition of terms


NEW ZEALAND
Shared Maternity Record of Care


USA
Guidelines for the New York State Certificate of Live Birth (PDF file) - used in conjunction with the Statewide Perinatal Data System (SPDS) to "guide the entry of the information from hospital and physician records and notes into the New York State Certificate of Live Birth."
Finger Lakes Region Perinatal Data System (FLR PDS) Data Dictionary (PDF file)
  • Johns Hopkins School of Public Health Forms, cards, data items, codes for punched card system
OB-10 Return Visit and Laboratory Record 1959-1962
OB-44 Prenatal Observations 1962
ZAMBIA
Zambia Electronic Patient Record System (ZEPRS)



Hand Held Records

View and/or contribute to our collection of examples of maternity hand held records, the UK child health "Red Book" and hand held records for other client groups.



References

  1. [Minutes of Information Standards Board meeting 24 March 2010, Item 7]
  2. [ibid., Item 7.3.1
  3. Minutes of Information Standards Board meeting 26 January 2011, Item 7
  4. Minutes of Information Standards Board meeting 30 March 2011, Item 4.1

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